Background: Case management is a subject of interest within pediatric palliative care. Detailed descriptions of the\ncontent of this type of case management are lacking. We aim to describe the contents of care provided, utilization\nof different disciplines, and times of usage of a pediatric palliative care case management program compared for\npatients with malignant disease (MD) and non-malignant disease (NMD).\nMethods: A three-month prospective study, with questionnaires filled in by members of a pediatric palliative care\nteam (PPCT) for each contact with parents.\nResults: Four hundred fifty-five contacts took place with parents of 70 patients (27MD, 43NMD). Sixty-two percent of all\ncontacts were with the specialized nurse. The child life specialists, psychologist and social worker were also regularly\nconsulted, the chaplain was not consulted. Ninety-five percent of all contacts took place between 8 am and 6 pm during\nweekdays, a limited number between 6 pm and 9 pm. Twenty-five percent of all contacts were proactively initiated by\nthe PPCT, 25 % were initiated by parents. In these care characteristics, no differences were seen for MD and NMD\npatients. Psychosocial topics were addressed most frequently. MD patients consulted the PPCT more often about school\nand NMD patients about socio-economic issues.\nConclusions: All different disciplines of the PPCT were regularly consulted, except for the chaplain. With an easy\naccessible team with a highly pro-active approach, availability from 8 am to 9 pm seems sufficient to accommodate\npatient�s and parent�s needs. More anticipation seems required for socio-economic topics. This insight in pediatric\npalliative case management can provide guidance in the development of a new PPCT.
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